Mum-of-one Lisa Parker was just 47 when she died at the Hospice in July 2017 after being diagnosed with motor neurone disease (MND) two-and-a-half years earlier.
Her MND had become so complicated that her husband Ant says he doesn’t know how they would have coped without the Hospice and since her death, he describes it as his ‘safe haven’ of support that he and their 11-year-old son Zack look forward to coming back to.
“The Hospice medical team worked so hard to get it right – to understand how best to support Lisa, a very strong woman who knew her own mind and how she wanted things done; to win her and my trust; to work together to deal with the challenge of her profoundly complex needs, and to respond and adapt to them as they changed on a daily basis.
“They cared, it’s quite simple – they just cared. No matter how hard it was, the Hospice was so supporting and comforting – a total home away from home.
“You can’t help but think if things had been different what would we be doing now? So having someone to share those thoughts and feelings with in a place like this is wonderful.”